Hunter Outcome Survey Hos. Data from the Hunter Outcome Survey HOS. The Hunter Outcome Survey HOS is a Shire-sponsored global observational registry initiated in 2005 that collects real-world data on the natural history of MPS II and long-term treatment with enzyme replacement therapy ERT with idursulfase.
Listing a study does not mean it has been evaluated by the US. A longitudinal observational study Poster244 Wednesday February 6 2019 from 430-630. PDF Mucopolysaccharidosis type II MPS II.
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Find read and cite all the research you need on. Genetic_Disease Recruiting Not yet recruiting Available Studies United States First posted in the last 100 days. Hunter syndrome patients in the HOS who have previously received idursulfase as well as treatment-naive patients who will begin idursulfase treatment within 30 days of study enrollment will be included. HOS collects information from patients about the course of their disease their medical management and the use of current or past medications or treatments if any.